"When there is suffering we often want to know why. We want answers. I want answers. I want explanations as to why some suffer and others do not. I want to know why some get better while others get worse. Is this fate or is this chance or is it just bad luck? How are we to deal with suffering? I have many questions and only few answers. I would like you to meet my brother. I have been drawn to photographing him for as long as I have been making pictures. The time I spend with him, looking through my camera, has forced me to ask questions about suffering, and faith and why anyone is born with disease. Nick has cerebral palsy. The pictures have been a way for me to deal with the reality of having a twin brother who struggles through life in ways that I do not.
"The younger twin developed Cerebral Palsy, causing his muscles to cramp and spasm at any moment, cramps that can last anywhere from minutes to days. Besides the cramps and spasms Nick can walk and speak at a functional level. "He understands enough about the world to know what he’s missing."
"When I look at him I feel lost. I wonder where the justice is in all of this. I am the brother who survives and has choices, and he is the brother who suffers and does not."
In his gripping black-and-white photographs, Capozziello captures an unromanticized yet love-filled portrayal of life with CP. Whether capturing the struggles experienced in a chaotic medical procedure or a lone trip up a staircase, Capozziello depicts pain and strength with unflinching honesty. When not donning hospital garb, Nick wears leather jackets, flannel shirts and the occasional earring, painting him as an individual and not a symbol of his disability.
Capozziello is currently in process of turning his photo series into a book, titled “The Distance Between Us.” Head to his Kickstarter page to get involved.